After a weekend full of family time with his aunt, uncle, cousins, and Oma, this week has been all business for Ren. I returned to work this week so I apologize for not being as good about keeping everyone updated, as there is much to tell. Going in to the weekend all the pieces were […]

Between returning to work, moving  to Children’s, and a service call in the morning because of internet issues that make updating difficult, there is much to report that has been going on. I promise to update everyone on Ren tomorrow, and I promise you that you won’t want to miss these details! Until then, keep […]

Good morning everyone. We just received word that Ren will be makig his move to the eastside of town, much close to home, and continue his journey at Dell Children’s Hospital. Specialists, private rooms, and treatment plan in action are all things that make the move so exciting. But before we get ahead of ourselves, […]

We are coming up on 48 hours since extubating Ren and he is going strong. Last night was a late night because despite being free of tubes (except his feeding tube that goes through his little nose) we could not seem to make him comfortable and he could not sleep. Normally, a parent has the […]

Eleven days has felt like an eternity, complete with with a full range of emotions, yet is a blink in time to most of us; leave it to Ren to put time in perspective. Today we were able to pull Ren’s breathing tube despite our trepidation and are so happy to report that our little […]

Today  Ren’s IV was removed because he is continuing to get everything he needs from his momma. Today Ren had a new visitor which is always excitng for all of us because until we are able to take him home, we have to rely on hospital visits to meet our awesome little dude.   Afterward, […]

Ren has continued to show efforts to move his head and limbs as well as over breathe the ventilator. We and our doctors are hoping to give him another chance without the tube in a week or so, and in the meantime possibly giving him a medication that helps reduce secretions to ensure his airway […]

Remember what I said about patience? Last night by the time we were leaving the hospital, the fax had come in and was in the hands of Ren’s nurse as she was standing in front of us, but she could not tell us what they said. Mainly bc of protocol, also because she can’t interpret […]

Once I am caught up, I will be updating on a daily or as need basis, but today I am going to pile a week’s worth of info into one post. Fortunately, my parents had come to town in order to stay at our house and take care of pets as we had planned to […]